Seven Sites Join Network as Clinical Associate Members
CHICAGO, Oct. 12, 2023 /PRNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) announced that seven medical centers have joined the PFF Care Center Network (CCN) as Clinical Associate members, a new membership option. Each of these Clinical Associates will collaborate with an existing Care Center Network site to help bring the resources of the PFF to even more people living with pulmonary fibrosis (PF) and interstitial lung disease (ILD). The Care Center Network includes 81 CCN sites and seven Clinical Associates in 39 states.
(PRNewsfoto/The Pulmonary Fibrosis Foundation)
"With the addition of seven Clinical Associate members, we are actively addressing the critical need to expand access for patients with PF and ILD to the resources available from the PFF as well as connecting more patients with providers committed to advancing the diagnosis and treatment of PF," said Dr. Sonye Danoff, PFF Senior Medical Advisor, PFF Care Center Network. "Our Clinical Associates will extend care to additional people living with these serious conditions and, in collaboration with CCN sites, they will provide patient education, clinical care and research opportunities including clinical trials."
The newly designated Clinical Associate members of the PFF Care Center Network are:
Through the CCN, Care Centers and Clinical Associates collaborate to promote and provide quality care to those living with PF. Each Clinical Associate is paired with a current Care Center member so they may collaborate to expand and improve pulmonary fibrosis care.
While Care Centers offer complete multi-disciplinary care on site, Clinical Associates may refer patients for procedures or services they are unable to offer. Clinical Associates actively participate in the CCN in working groups and committees, including the Nurse and Allied Health Network, which provides professional development and networking opportunities.
More than 250,000 Americans are living with PF and ILD and over 50,000 new cases are diagnosed annually. There are over 200 types of ILD, which are characterized by varied amounts of inflammation, scarring, or both. This damages the ability of the lungs to absorb oxygen from the air. PF means scarring of the lung and can be seen in many types of ILD.
The 88 sites now operating in the PFF Care Center Network are:
The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. The PFF has a four-star rating from Charity Navigator and is an accredited charity by the Better Business Bureau (BBB) Wise Giving Alliance. The Foundation has met all of the requirements of the National Health Council Standards of Excellence Certification Program® and has earned the Guidestar Platinum Seal of Transparency. For more information, visit pulmonaryfibrosis.org or call 844.TalkPFF (844.825.5733).